Update on the Doctor Situation
Jul. 28th, 2020 12:48 amI said I was calling in regard to the voicemail I left last week, and the receptionist knew what I was talking about pretty quickly, which begged the question as to why she never actually called me back to give me the info I asked for in the voicemail. Privately, I'm sure why she didn't. She either has some aversion to doing her job properly, or some aversion to me. Some years back, I had an ultrasound that revealed a tumour, a fact I was sure of since the tech who did the ultrasound pointed it out to me on the screen. The results were supposed to be sent to my doctor, who would follow up with me. Weeks went by, I heard nothing, so I finally called and asked if the results were in.
"Oh yes, they got here," the receptionist told me. "They didn't show anything." There was a pause, before suddenly her tone changed. "But if you're still having symptoms, you should definitely make another appointment! Do you want me to do that?"
The results did, in fact, show something, but the whole incident made me wonder how many times she got test results in and either assumed there was nothing to follow up with because the results didn't come with some big flashing light and siren or something, or else she looked through all the test results and made her own determination as to whether "something" was worthy of follow-up. Option one implies she's grossly negligent and makes me fear for the people who had serious health conditions that she caused to delay treatment, the other implies she thinks she has the medical training to know what a significant "something" is. And given that sometimes a negative test result for one condition means that another condition is the likely diagnosis, that's still negligent.
Or she just has something against me and doesn't want to deal with me. Honestly, given my experiences with people, I wouldn't be surprised at this either, somehow.
Anyway, she double-checked, and confirmed that I had indeed been referred to a local rheumatologist, and I got their name. Good. Progress. She also gave me the phone number... which turned out to be the phone number for the local hospital. The hospital, at least, gave me the correct number for the rheumatologist, so I called them and left a message because I guess their office hours were done for the day when I called.
I feel like a shit, calling and leaving a voicemail that essentially says, "So, do I have an appointment? Because knowing that would be a big help right now." But at the same time, I've been waiting nearly 2 months at this point and only just found out that the ER doctor did his job and properly referred me; I had started to suspect that I had once again slipped through the cracks and not been referred at all! Because that too would have been about par for the course, given my experience with doctors. Now I at least know that I'm a little bit ahead of where I started, even if I still have no idea when my appointment will eventually be.
And given that my pain isn't exactly getting easier to manage, just knowing my name was passed along is something. I'm struggling on a day-to-day basis here, it's even odds as to whether I'll sleep enough, I feel like a bigger inconvenience than normal because not only am I not earning any money to contribute to household expenses, now I'm barely able to do chores and stuff around here, so I feel like an even greater useless lump than before. I'm barely capable of maintaining my hobbies, let alone actually be productive on projects. I haven't written in weeks, because I have no creativity or inspiration or motivation. I haven't worked on videos, because I can't focus. I read some, but it's slow and distracted. I'm worn out, and I don't know how long I'm going to have to keep going like this before I can even begin talking to someone about how to properly manage it or be treated for it.
That's another reason why I either desperately want a house with my own room, or an apartment of my own (neither is going to happen, but still). Even if I had to entirely take care of myself with no help, if I lived alone, I feel like I'd have an easier time managing, because I wouldn't be in anyone's way. If I'm awake sporadically and mostly at night, I could do things that make noise and I wouldn't disturb anyone else. If I'm too tired to wash dishes, they wouldn't just be sitting there for someone else to do; I could wash them a couple at a time, when I had energy, and at any time of day. If I'm awake all night and have the energy, I could cook food without worrying that the light and sound will wake anybody up. I could comfortably watch a movie without having to use headphones or keep the volume down super low. I actually feel like I'd be doing better if I was living alone, or at least had a room I could go to where I could sit around with lights on and watch TV with the volume up and not worry about R not getting enough sleep. But I don't have that here. And it's not likely I'm going to have that again any time soon. So I just exist in this uncomfortable painful holding pattern where I feel like I'm just useless and in the way and barely functioning, because I'm not in an environment where I can actually function.
But I'm too tired and frustrated to go into another rant about all of that. I called the doctor. I found out a thing. That's basically all I did today, but it was still something, and I'm going to try to focus on that so I don't get as discouraged about everything else.